Self-Advocates of Indiana Newsletter
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Medicaid Waiver Redesign 


The state has released the first concept paper about waiver redesign. 

The Division of Disability and Rehabilitative Services (DDRS) has begun the process of redesigning  Medicaid Waivers through the Bureau of Developmental Disability Services (BDDS).  They have spent the last year asking for people’s thoughts about what they want waivers to look like.  The state has used the information and ideas people shared with them to write their first concept paper.  This is a summary Self-Advocates of Indiana and The Arc of Indiana have created to explain the ideas in the concept paper.  

A concept paper is the way the state is sharing the options they are looking at from the ideas they’ve received over the past year.  It will share some of the things people are concerned about.  It will also talk about some of the difficulties people shared to start a conversation about how to work on those concerns and difficulties. 

It is very important to know that there are no specifics in a concept paper.  The state is sharing their thoughts so people, especially self-advocates and families, can tell them what they think the specifics should be before they start writing the new waiver plans.  The state wants self-advocates and families  to share their thoughts and opinions.  They want to make waivers the best they can be, and they need self-advocates’ opinions to help them. NOTHING in the concept paper is final.  

Indiana University- Kokomo on February 6th from 4 PM-6 PM
2300 S Washington St. 
Kokomo, IN 46902
Kelley Student Center, Room 130 (across from bookstore)
Attendees should park in “Student Parking”
Parking permits will be distributed to attendees, to be displayed in their vehicles.

Please follow Self-Advocates of Indiana on Facebook and The Arc of Indiana on Facebook to get more information about listening sessions in your area!

The Arc of Indiana Waiver Redesign Website
BDDS/FSSA Waiver Redesign Website
Eventbrite Tickets Here
INSILC Legislative Advocacy Workshop Series 
Don’t Miss the FINAL workshop to learn how to Be The Voice in the ongoing 2020 Indiana Legislative Session 
Still want to have YOUR say in legislation this legislative session?
Still want to learn how to make YOUR voice heard?
Still want to know what to say to make sure change happens that YOU want? 
Then be sure to join the Indiana Statewide Independent Living Council (INSILC) for its FREE third and final workshop in the INSILC Legislative Advocacy Workshop Series developed BY YOUR PEERS WITH DISABILITIES, FOR ITS PEERS WITH DISABILITIES, COMMUNITY PARTNERS AND ALLIES.
The final Workshop in the series takes place THIS THURSDAY – JANUARY 30 FROM 4:30 P.M. –  8:00 P.M.!
Learn more and get registered to attend either onsite or online here:
In this third workshop, we’ll will be discussing current legislation moving through the 2020 Indiana General Assembly, examining how particular bills will impact our peers with disabilities, and what actions you can take to engage in any INSILC advocacy efforts.
Missed the first two workshops in the series? No worries! Get access to the archives and materials on our website:
Can’t join us on Thursday? Here is how you can still have an impact and #BeTheVoice!
  • Call 800-382-9467 or email your Senator and express how SB255 (Insulin Drugs) and SB312 (Parents with a disability) will have an impact on you and/or your fellow Hoosier peers with disabilities.
  • Let us help take the stress out of figuring out what to say! Be sure to check out the attached Legislative Advocacy Informative Tip Sheet for both of these bills and some recommended messaging you are welcome to use when you contact your Senators to share with them on how the bills will have an impact on the disability community.
 Any questions or reasonable accommodation requests for the INSILC Legislative Advocacy Workshop Series may be directed to the INSILC Director of Public Policy & Systems Advocacy, Morgan Daly at
For more information about INSILC, visit

IHDCA Survey

Read More

There's No Place Like Home: A National Study on Disability Housing


Key Findings:

  • Most people with I/DD and their families said that they had very little choice in where they live because there were not many home options that would take a person with I/DD.
  • Family members often decided where the person with I/DD would live, but people with I/DD want to be involved in this decision.
  • People with I/DD cherish time they have in and with the community, and want more opportunities to integrate into their communities.
  • People with I/DD want to contribute to the choices that impact their lives, such as where they live, who they live with, and how they spend their time.
  • People with I/DD want opportunities to learn new skills, participate in tasks such as cleaning, cooking, and medication administration, and interact with friends and romantic partners.
  • People dream of having independence and opportunities, a setting that is physically accessible, having the ability to see their friends whenever they want, being treated with respect, and having well paid and qualified support staff
For more information, please visit The Arc's website
Read More
Self-Advocates of Indiana
143 W. Market Street, Suite 200
Indianapolis, IN 46204
317-977-2385 — Fax

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Self-Advocates of Indiana · 143 W Market Street · Suite 200 · Indianapolis, IN 46204 · USA

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