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July 2020
Hello,
I hope this newsletter finds you well.
If not, I hope your day gets better! There is a lot of great information, updates, and fun events in the July issue that it's sure to raise your spirits. 
Team registration for the Walk the State Challenge is now open! That means it is time to start forming your team of friends, family, and coworkers to take on the 455 mile exercise challenge. Pro tip: the more people on your team, the more people to divide out the miles - the bigger the team the better (and less work!)
I am so excited to take the event virtual and include teams from all across the state. It is perfect timing as we look statewide to increase access to services and strengthen rural communities. Both the upcoming GIVE65 and Walk the State events will support our rural outreach efforts. Learn more about our new Rural Community Outreach program here
July is packed with events, educational opportunities, professional trainings, celebrations, and more. Keep reading to learn how you can stay engaged over the next month. 
Have a safe and happy 4th of July 🎆
Until next month, 
Amber Winter 
The GIVE65 Event

GIVE65 is a 65-hour online giving event from Wednesday, July 15 at 5:00 am to Friday, July 17 at 10:00 pm.

Scheduled giving takes place July 13-14.

GIVE65 is presented by the Home Instead Senior Care Foundation - who has $250,000 in matching funds available! We are eligible for up to $5,000 of those matching funds. The funds are given on a first donated, first matched basis. 

Scheduled gifts are the first process and the first to be matched. That's why we are encouraging our donors to schedule donations from July 13th- July 14th - for the best chance to get your gift matched and double your impact!

This year's campaign will support rural outreach through the Rural Community Outreach (RCO) program. This program was created in response to the specific needs of rural communities. The purpose of the program is to actively engage with rural communities in a way that promotes community-building, expands programming based on local needs, and creates lasting change.

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earn more about the RCO program and how it impacts rural communities on our campaign page and schedule your donation July 13th- July 14th. 
Schedule your donation here July 13-14
A Journey Shared by All
Over the past few weeks we have taken an inventory of ourselves, the organization, and our role in fighting racial injustice in our community. We want to share some information about institutionalized racism in the healthcare system, racial disparities within the national and statewide Parkinson's community, and steps we plan to take as an organization to be more inclusive and representative of our whole community.  

We have compiled a list of resources from peer-reviewed articles, our national partners, webinars, podcasts and more for you to learn more about institutionalized racism in the healthcare system and racial disparities within the Parkinson’s community. Just like we believe the journey of Parkinson’s is A Journey Shared, we also believe the journey to fight racism is a journey we all share.  

Walk the State Challenge
Team registration for the Walk the State Challenge is now open (and free!)
From August 31- September 12th, teams across Nebraska will be taking on the Walk the State Challenge to exercise, bike, walk, and run 455 miles - the distance across Nebraska! Are you up for the challenge?
Many people with Parkinson's are still practicing social distancing. The Walk the Park Challenge is a great opportunity for support groups, Parkinson's exercise classes, staff members, and friends & family to engage with one another, stay active (you're already exercising, right?), and raise money for Parkinson's services in communities across Nebraska.

View the event flyer and Walk the State Challenge Overview to learn more. 
Register your team now

Sponsorship Opportunities Available

Sponsor the Walk the State Challenge and virtual event! We rely on our sponsors to help make the event a success and to turn our mission into a reality. Sponsors will receive statewide recognition and other perks including social media posts, logo on event website and t-shirt, 2 event t-shirts, and more. 

Are you interested in becoming a sponsor? View the Sponsor Form
here.
Webinars

Parkinson's Nebraska Educational Series

If you have Parkinson's disease and experience dizziness when standing, you could have neurogenic orthostatic hypotension (nOH)—a condition that can be managed.
Doctor I'm Dizzy! Is This My Parkinson's? Understanding Neurogenic Orthostatic Hypotension

featuring Dr. Shanti Frausto, PhD, MBA


Date: Friday, July 24th
Time: 6:30 pm
Dr. Frausto is the Senior Medical Science Liaison at Lundbeck Pharmaceuticals. This month, he will be sharing general information on neurogenic orthostatic hypotension (nOH), including causes, symptoms, the burden of living with nOH, and the diagnosis and management of nOH. 
The Zoom information for this program will be available soon!
Thank you to our partner, Lundbeck, for sponsoring this presentation.
Webinars and other educational programs can help keep you engaged and informed from the comfort of your home.

Our website maintains an updated list of Parkinson's webinars as well as recordings of past programs. 
Support Groups

Parkinson's Nebraska Virtual Support Group

An Update on Parkinson's Disease Research

featuring Dr. Howard Gendelman

Date: Saturday, July 11th
Time: 2:30 pm
Dr. Gendelman is the Margaret R. Larson Professor of Internal Medicine and Infectious Diseases Chair for the Department of Pharmacology and Experimental Neuroscience and research scientist at the University of Nebraska Medical Center.

He will be joining us to provide an update on the status of Parkinson's disease research at UNMC.
Tune in live on Zoom at the link below:
          Zoom link: https://us04web.zoom.us/j/386240504
          Meeting ID: 386 240 504

June Support Group

Did you miss out on June's meeting with Cheri Prince, DPT with PDWELL? Watch it below now!
Find more online support groups for people with Parkinson's, caregivers, people with young onset, and other specialty support groups on our website. 
Exercise Classes
Fitness and Beyond is our longest running sponsored exercise class provider! Jacey Gengenbach, owner and trainer, has been teaching Parkinson's exercise classes since 2005 when she became Colleen's (our founder) "exercise person" 💪 Last month, we shared news that they were moving buildings. Check out this article about the move in the Omaha World Herald!

Since then, Fitness and Beyond has been providing high-quality Parkinson's exercise classes to the Omaha community. Now, they are offering Strength & Balance and Alignment, Breathing, and Control classes online - so they can be accessed statewide!
  • Strength & Balance This class works on cardiovascular fitness, light resistance training (muscle strength and endurance), flexibility, gait training, posture, and balance/coordination skills. An emphasis is placed on activities of daily living and exercises to improve function and help each person continue to do what they love to do for as long as they can! 
  • Alignment, Breathing, & Control This class works on corrective exercise techniques to develop more optimal posture and movement habits.  These effective exercise patterns are integrated into the functional movements that mirror their day to day activities so participants are safely and successfully working towards achieving their health and fitness goals. 
Classes are offered:          
          Monday- Thursday | 12:30 pm
For more information or to register for classes, contact Jacey at jacey@fitnessandbeyondomaha.com or call 402-871-7786.
Some gyms have been opening across Nebraska, but many group exercise classes are still not meeting. We will try to keep you updated as classes open back up, but make sure to contact your local providers for the most up to date information. 

It is crucial to keep moving to maintain functional mobility and independence. If your classes are still not meeting in-person, make sure you're still moving with online classes!
Speech Therapy and Maintenance 
Just as PD affects movement, it affects the muscles in the face, mouth and throat used in speaking and swallowing. Specialized therapy programs target Parkinson’s speech and swallowing symptoms and can help improve cognition & clarity.
Specialized therapy programs:
  • LSVT LOUD®
  • SPEAK OUT®
  • LSVT LOUD for Life®
  • The LOUD Crowd®
Congratulations to the Box Butte General Hospital who won a grant from the Parkinson’s Voice Project to provide the SPEAK OUT® and The Loud Crowd® programs in Alliance, NE! If you are in the Alliance area, contact Francis Patrick Duldulao, MS, CCC-SLP at 308-761-3372 to get started! 
It is crucial to to continue exercising the muscles to maintain speech volume, swallowing function, drooling and more with ongoing speech maintenance. Continue reading for more information on the importance of ongoing speech maintenance, online voice exercise resources, and specialized therapy resources available in Nebraska.
Professional Development Opportunity
Calling all physicians and allied health professionals! 📢
Parkinson's disease is set to double in the next 20 years. That means that primary care providers, general neurologists, nurses, and allied health professionals will be treating more and more people with the disease.

The Davis Phinney Foundation presents the Parkinson's for Primary Care Doctors and Allied health Professionals provide professionals with an understanding of Parkinson's disease, "interviewing" patients with PD, exercise and medication management, when to make referrals to a specialist, and more. 
Parkinson's for Primary Care Doctors & Allied Health Professionals
with Dr. Ray Dorsey

Date: Tuesday July 7, 2020
Time: 3:00 pm
Register now
This is a great opportunity for providers in Central and Western parts of Nebraska. With a lack of movement disorder specialist in these areas of the state, people with Parkinson's are relying on primary care physicians and local professionals to provide the best care possible.  
In the Community

Thank you to Walmart Neighborhood Market!

Thank you so much to Austin and the staff at Walmart Neighborhood Market Omaha - L St for presenting Parkinson's Nebraska with a $2,500 gift as part of the Walmart Neighborhood Market Health and Wellness Day of Giving ❤️
It is always inspiring to hear the community's connection to Parkinson's disease and commitment to improving lives. We are grateful for your trust in our mission and are looking forward to using this gift to increase our awareness and outreach efforts!
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