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Welcome to June's news from APEC.

May was a phenomenally busy month for us, with stands at the Primary Care Conference at Birmingham NEC, Midwifery Conferences at Ealing and Cardiff and also, our annual expert meeting in London. As well as that we hosted a multidisciplinary study day in Liverpool, attended a Parliamentary Debate on pre-eclampsia and were involved in World Pre-eclampsia day on 22nd. 

Sincere apologies - the May newsletter has become early June - we were a tiny bit busier than usual and for a staff of three part timers it was a lot to juggle!
Brand new Pre-eclampsia Know the Signs leaflets now available to purchase
Visit APEC shop
Did you know we run multidisciplinary study days on all aspects of pre-eclampsia
More information
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NEWS

Parliamentary debate: Why are babies still dying in the UK?

 
A Parliamentary debate, called by Patricia Gibson MP, took place on  May 9, to examine urgently what more can be done about the numbers of babies still dying in the UK from complications relating to pre-eclampsia.

Marcus Green, APEC CEO with supporters and clinicians outside Westminster

Westminster Hall heard heartfelt speeches from Patrica Gibson, who devastatingly lost her own son, and MP's David Linden, Gavin Newlands and Sharon Hodgson, whose families were also affected by the condition.

Jackie Doyle-Price, (Parliamentary under -secretary for Health and Social Care) made some very good points in her summing up:

 
"This is the first time that the subject has been debated by Members of Parliament; while that should be shocking, in some respects it is not, because often things that affect many women are not adequately debated in this place. Thankfully, now there are more of us here, we can start to address that, and we will do so all the more often."
 
APEC (Action on Pre-eclampsia) called on the government to prioritise research into stillbirths from pre-eclampsia, and to increase the resources available to support parents through this trauma. Many of APEC's members and supporters got behind the debate, asking their own MPs to attend, and sharing information on social media. Thank you to everyone who supported this debate, it is just the beginning, and now the message is beginning to get through.
 
Read the full debate text here

World pre-eclampsia day

Around the world people shared stories, organised fundraising activities and raised awareness on 22nd May, World pre-eclampsia day.

Thank you so much to everyone who got in touch and wanted to help raise awareness of the signs and symptoms of pre-eclampsia.
Pictured -  staff from Southend University Hospital, Essex where final year student midwife Charlotte Aldridge organised a bake sale for World Pre-eclampsia day
Staff and volunteers at the Rassmuss Foundation, Paraguay promote World Pre-eclampsia day. APEC have worked closely with Professor Ramon Batalgia and Dr Carol Lole-Harris to promote safe pregnancy and the importance of checking blood pressure.
Ghana APEC held their very first Scientific Meeting and we would like to congratulate them on this huge achievement.

Expert Meeting 2019: Hypertension in Pregnancy

An exploration of the Scientific and the Human side of pre-eclampsia

At our annual expert meeting we were delighted to be able to introduce Dr Dawn Harper, new APEC Patron. Our ninth annual Hypertension in Pregnancy expert meeting was a great success, with over 100 delegates attending.

The day was divided into two sections: The Scientific and the Human. Delegates heard reports from new 'Hot' research, as well as snippets on trials at the recruitment stages and the latest world guidelines on managing pre-eclampsia and hypertension in pregnancy.

The afternoon session focused on the Human side of pre-eclampsia, and the audience heard real life stories of the devastation this disease can cause. We also learned about the impact of pre-eclampsia in other parts of the world, particularly poorly resourced settings such as Uganda, and the way bereavement care and stillbirth is being researched in the UK.

We would like to thank all the speakers involved, but in particular to Debbie and Ray Adams and Lorna Kenny for bravely sharing their own experiences of pre-eclampsia.

A few examples of some of the feedback we received:

 “Really great interesting and diverse day”

“All talks interesting and relevant, personal stories especially pertinent and moving”

“This is my third year of attending and the day just gets better and better” 

EDUCATION

Study day, Liverpool John Moores University May 2019

APEC visited Liverpool once again this year for another multidisciplinary study day on pre-eclampsia.
Thank you to all our speakers Dr Andrew Sharp, Professor Louise Kenny, Jane Plumb and Faye Cameron for volunteering their time. Feedback from delegates has been very positive. Thank you to everyone involved for helping to make the day such a success.
Enquire about APEC holding a study day at your place of work or study
Calling potential speakers!   
 
Consultants, Doctors, Senior Midwives - would you like to speak at one of our study days? Do you have a detailed knowledge of pre-eclampsia? We provide presentation guidance, a certificate, expenses, and refreshments. Please do email Rowan our Education officer if you would like to volunteer for future days or for more information study@apec.org.uk

RESEARCH

Help us decide the final top 10 most important research questions relating to high blood pressure in pregnancy in a workshop setting

Dear supporters
 
We would like to invite you to a workshop at St Thomas’ Hospital, London.  This is part of the Blood Pressure in Pregnancy James Lind Alliance Priority Setting Partnership, led by Professor Lucy Chappell
https://www.bpinpregnancyjlapsp.org.uk/
 
In October 2018, we launched an initial survey. We wanted to find the questions that could be used in future research, asked by those who have experience of, or work with women affected by high blood pressure in pregnancy. Over 250 people submitted more than 750 questions. 50 summary questions were listed in a second survey for interim ranking.
 
What is the workshop?
The aim of the workshop is to decide the final top 10 most important research questions relating to high blood pressure in pregnancy with the help of your experiences, your opinions and the results of the recent survey.  These top 10 questions will be published to help guide research into answering questions which are important to you.
 
When and where?
This will take place on Thursday 20th June, 10-4pm at St Thomas’ Hospital, London.  Travel expenses within the U.K. will be reimbursed and an agenda will be sent nearer the time.
 
If you would like to attend or have any further questions regarding the workshop, please email alison.ho@kcl.ac.uk
 
We hope you can make it and look forward to hearing from you.
 
Best wishes,
Ali
 
Dr Alison Ho (on behalf of the JLA PSP steering group)
Clinical Research Fellow in Obstetrics
Department of Women and Children’s Health
School of Life Course Sciences
King’s College London

FUNDRAISING 

Thank you so much to pre-eclampsia sufferer Emma Wheate-Price for holding a charity Hafla. Emma raised over £800 for APEC and also helped to raise awareness locally. Awesome, thank you so much!!
 
Copyright © 2019 Action on Pre-eclampsia, All rights reserved.


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