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March APEC Newsletter

Dear <<First Name>>,

Welcome to the March edition of our newsletter from Action on Pre-eclampsia. Thankfully it looks like the winter weather is now firmly behind us. Lots to tell you about again. Our CEO Marcus Green, travelled to South Africa to attend several international conferences on maternal care, the primary aim of course to save lives on a global scale. He has returned full of ideas and enthusiasm.
We will also fill you in on:
  • Fundraising
  • Education
  • Resources
  • Shop
  • Upcoming events
  • Getting involved

 
News
 


Message from
Marcus Green, APEC CEO



I've recently travelled to South Africa to meet with colleagues on the CRADLE trial and to attend the meeting of the International Society for Obstetric Medicine. 
 

Both meetings were inspirational and I learned so much about the harsh reality of pre-eclampsia in low income settings.  We know that whilst one in a million mums will die from pre-eclampsia in the UK, the global situation is perilous and we lose a mum-to-be every six minutes somewhere in the world.
 
Globally, APEC is one of a handful of organisations supporting and representing parents and we want to support the development of patient support throughout the world.  We are excited about World pre-eclampsia day on 22nd May and will support this whilst maintaining our roles in the UK
 
The work we do in the UK will continue to be right at the heart of our ethos and we will continue to represent patients on research studies and advocate for patients.  Throughout the year we will be developing new resources for the UK, but we can't let a global horror continue without playing our part in this.
 
We are looking for volunteers who can help in two very specific ways, firstly, are you bi or multi lingual?  If so, we'd love to hear from you as we want to translate more of our materials into the main global languages. Please email Rowan study@apec.org.uk if you can help.
 
Secondly would you be interested in sitting on a research group and advocating for patients?  If you can help with either of these things then please do get in touch with Carol on admin@apec.org
 
Finally thank you all so much for all your support,

Marcus

 
Don't forget to pre-order your copy of Understanding Pre-eclampsia by Redman and Walker- copies expected very soon!
Education

 

Multidisciplinary Educational days on pre-eclampsia for those involved in the care of pregnant women


This year we have an unprecedented number of in-house study days arranged, and you can still book a place at our London event on 27th September. We do expect this to be oversubscribed, so advise booking early to avoid disappointment
 
London 2017

Our main APEC London Pre-eclampsia Study day for anyone involved in the care of pregnant women will be  on Wednesday September 27th,  The Wellcome Conference Centre, Euston Road, London NW1 2BE
 

We have not increased our prices, and the day represents excellent value at £50 for student midwives and £100 for everyone else. For more information and to book your place, visit our website here:
 http://action-on-pre-eclampsia.org.uk/professional-area/apec-study-days/

 

APEC Expert Meeting 2017:
Hypertension in Pregnancy day
 
The Action on Pre-eclampsia Expert Meeting 2017 will be held on 25th May 2017, in central London.

Professor Andrew Shennan, Professor Louise Kenny, Professor Christopher Redman, Professor  Basky Thilaganathan, Patricia Gibson MP, and Professor Kypros Nicolaides are amongst the speakers confirmed.

Please contact Rowan: study@apec.org.uk for more information.
Resources
 
Visit our APEC shop for pre-eclampsia resources 
We have a variety of resources available for sale through our online shop. You can browse our items for sale in one place and pay online using PayPal or Visa

We have received new stocks of the highly praised Cradle VSA Blood pressure monitors.  The price for these are £20.00 + £3.00 p&p (UK only) and can be ordered through our website:
http://action-on-pre-eclampsia.org.uk/professional-area/cradle-vsa-blood-pressure-monitor/
 
If you require more than one or require posting overseas, or if your hospital/trust would like to place an order then please email
info@apec.org.uk for a price.
 
Not only purchased by midwives and NHS trusts, some recent purchasers of the monitors include West Midlands Fire Service, The African Maternity Link (for use in Sierra Leone) and a medical centre in Paraguay.


Our leaflets:  Essential Pregnancy Information and Postnatal recovery from pre-eclampsia and Understanding Pre-eclampsia: a guide for parents and midwives, by Prof Chris Redman and Isabel Walker can be pre-ordered here too.
Visit the new APEC online shop here
London Marathon 2017

We asked our runners to tell us their #reason2run as part of our social media awareness campaign. Here are some of their responses:

My son and I nearly died - I'm so grateful to the experts
I'm running for APEC because I suffered with pre-eclampsia from 28 weeks during my first pregnancy and ended up having an emergency c-section at 30 weeks to prevent me and my son dying. Not enough people are aware of how serious a condition it is. Eoin was born weighing 2lb 6.5 oz and spent 7.5 weeks in Bath RUH NICU. They were amazing. He is now 8 and no lasting problems - I am so grateful that we had a team of pre-eclampsia experts around us. 
Siobhan
 
I want other parents to know the signs of pre-eclampsia
I suffered with pre and post eclampsia and was unaware of the signs until I was sent in at 26 plus 5 days pregnant. If it wasn't for the nurses and doctors. I may have not been here today. So I want to raise awareness so mums can be aware of the signs to look for. 
Anieke
 
I hope other families won't have to face the same devastation as us
I am running the London Marathon 2017 for APEC to raise awareness about pre-eclampsia.  It devastated my wife and I two years ago when our baby boy Tom died.  I want to raise money in the hope that other families in the future won't have to face what we did..
Mike

APEC resources have been a great source of knowledge and skills during my midwifery career
I've worked as a Midwife throughout the UK and overseas for over 10 years and I've seen and cared for women with Pre-eclampsia across the spectrum my entire career. I owe a great deal of my knowledge and skills to APEC! I've attended numerous study days and often advise women and families recovering from pre-eclampsia to access APEC resources.
Jill 

I want to raise awareness of this scary condition
My wife was diagnosed with pre-eclampsia during the pregnancy of my first daughter and we knew nothing about this scary condition. I don't want people to have to go through what we did so if I can help APEC by raising money as I run then I am more than happy to do that. 
Richard

I have witnessed the tragedy of pre-eclampsia first hand
I have witnessed the distress and  unbelievable tragedy that no parents should have to go through as a result of pre-eclampsia, and it's as a parent I feel I need to help and do my bit to support the cause. 
Andrew

I want to help make pregnancy safer
I had severe pre-eclampsia during my first pregnancy resulting in my baby girl being delivered 8 weeks early. We were lucky but others are not. I want to help keep women and babies safe during their pregnancies by helping APEC fund vital research into this life threatening condition.
 Lisa

I feel very lucky my twin boys and I survived
I had pre-eclampsia with the pregnancy for my twin boys who are now 3 years old, It was a very frightening time, requiring a c-section at 34 weeks and constant monitoring throughout the end of my pregnancy and the twins being in the special care unit for 2 weeks. I'm very lucky we all survived and this is why I have chosen APEC to run for. 
Sammy 

APEC's work to educate and provide support is incredibly important to me
Until recently I was completely unaware of pre-eclampsia, Then my brother Dave and his wife Becky were diagnosed with pre-eclampsia while pregnant with their first child. Becky became very ill very quickly and a decision had to be made to deliver my new niece (Emmeline) by C-section 7 weeks premature. Due to the incredible care at Surrey hospital given to the Dave, Becky and amazing Emmeline, all came through the birth reasonably well.  Needless to say APEC's work is now incredibly important to me. They work to educate and increase awareness of pre-eclampsia and how best to deal with it and provide support before and afterwards.
Richard

We of course would like to thank all our wonderful runners, without them we simply couldn't fund many of the projects we do. Raising
money by running the London Marathon is a massive ask; an emotional thing that people do not take on lightly and we are incredibly grateful to them all.
Please do come along on Marathon day to cheer them on- email us for cheering point information- marathon@apec.org.uk



Would you like to get involved in Patient and Public Involvement (PPI) for APEC? 




We are looking to recruit volunteers to become PPI reps to help facilitate long term research projects. We would need you to commit to quarterly meetings over two years in London.  It would initially involve a 1/2 day training in London and travel expenses will be paid.  For more information please email Carol at info@apec.org.uk 
Primary care and Public Health Conference
 
Now in its 27th successful year, Primary Care and Public Health continues as the UK’s leading event for GPs, clinical commissioning groups, community nurses, midwives, AHPs (physiotherapists, podiatrists, speech & language therapists, dietitians) and health care managers working in primary care, community care and public health. With 20 free of charge content-led CPD conference programmes, an impressive speaker line up and an unrivalled exhibition showcasing the latest ideas, innovations and products from who’s who in the health care arena, it is no wonder that over 6500 delegates attend every year. Add to that the prestigious support from leading professional organisations and an engaged and highly influential audience that truly embraces the NHS Five Year Forward View, and you will want to make sure you are part of the success story.


APEC staff and volunteers Jackie and Karen will be at the conference this year, so make sure you come along and say hello if you are there, we would love to see you.

 
Contact Address:

80B The Stables, Evesham, Worcestershire WR11 2PA
Tel 01386 761848
email study@apec.org.uk

Action on Pre-eclampsia is a UK registered charity. Charity number: 1013557 

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