Copy
View this email in your browser
Welcome to February's news from APEC. We hope everyone had a relaxing half term and are enjoying a bit of this beautiful weather.
We have some very exciting things to tell you about, in particular our brand new Awareness Campaign. We hope it will make a big difference to pregnant mums and their families to have easily accessible, free information on the signs and symptoms of pre-eclampsia.

Latest News

Pre-eclampsia: Know the Signs Awareness project


If you are pregnant and you pick up a FREE Emma's Diary pack from mid March 2019 you will find inside a fab new little leaflet designed to fit into a purse.

This eye-catching and colourful leaflet we hope will be a game changer in raising the profile of pre-eclampsia, especially among first time mums.

It is designed to make everyone familiar with the symptoms and signs of pre-eclampsia and know exactly what the antenatal tests are for.

It also signposts our APEC advice and helpline and website, so information is clearly available.

The cost of this project, which will run initially for 12 months and reach 300,000 pregnant women, has been met by our wonderful London Marathon runners, 2019. Thank you to all involved, look out for the leaflets!

 

What do you think? APEC Survey 2019

As we mentioned last month, APEC is planning for the future.
We have a well-established team in Evesham, Worcestershire and we are making an impact in lots of areas. 

Our future is ambitious which is why we and we want to ask your views on what we should be doing going forward. 

We will then take these to a strategy day in April. If you have five minutes, Please do join in as your opinion really counts.

Take the quick survey

Education Update

Multidisciplinary study days on pre-eclampsia  

Keele - February 13th

We were delighted to attend Keele University on 13th February, where we were joined by some wonderful delegates and speakers. Feedback received on the event was exemplary and we are incredibly proud of everyone involved.
All attendees said they would "definitely recommend" the day to colleagues. Special thanks to Lynsey and David Regan who bravely spoke about their experience of pre-eclampsia.
Thank you also to our other speakers, Mr Nigel Simpson, Dr Jenny Myers and Jenny Chambers, CEO
ICP Support

Some of our delegate feedback from Keele:


  "Really glad I had the opportunity to attend""The whole day has been truly enjoyable. The speakers have been easy to listen to and pitched at just the right level. I could listen to them all day, I have learnt so much. Thank you."                                                                                                        

 "A very informative study day that will definitely inform my practise. Thank you!"

 "One of the best learning platforms on Pre-eclampsia I’ve ever been to, thank you!   

2019 Study Days on Pre-eclampsia  

Our study days are now held in partnership with Universities and Hospitals 'In House' 
Belfast, Northampton, Hertfordshire, Liverpool and Newham are all confirmed for 2019. Tickets are from £20 in most cases. For general information on our days and how to arrange one with is please do take a look at our website 
Alternatively email study@apec.org.uk for more information or click below the relevant button.
Book tickets for Belfast, 3rd April
Request more information for Liverpool, 30th May 2018
Book tickets for Northampton 3rd July
Request more information for Hertfordshire, October 15th
Request more information for Newham, November 4th 2019
Calling potential speakers!   
Consultants, Doctors, Midwives - would you like to speak at one of our study days? Do you have a detailed knowledge of pre-eclampsia? We provide presentation guidance, a certificate, expenses, and refreshments. Please do email Rowan our Education officer if you would like to volunteer for future days or for more information study@apec.org.uk
 
E-Learning
 
We have had over 700 midwives and students sign up for the new e-learning package which is a comprehensive and thorough learning programme, Please do take a look here at it if you would like to reinforce/expand on your existing knowledge. 
Register for the E-Learning course

Expert Meeting 2019 Hypertension in Pregnancy

We are delighted Dr Dawn Harper, new APEC Patron will be speaking


            

 
We will be back for our annual Hypertension in Pregnancy meeting in 2019. Research proposals, study feedback and recruitment for new studies will all feature highly, alongside personal stories of pre-eclampsia and hypertension care across the globe.

Thank you to everyone who has expressed an interest, electronic invitations have been issued.

The day is aimed at Consultants, Research Midwives Healthcare professionals with an interest in pre-eclampsia and stakeholders.

NEONATAL Mental Health Awareness Week 
15-21 April

Leo's has been instrumental in inspiring charities and neonatal wards to apply better practice around mental health of parents and staff.

The week will highlight the long-lasting impacts on the mental health of parents, siblings and grandparents when they have been on a neonatal journey. It will also consider the impact on midwives, neonatal nurses and doctors and allied health professionals such as neonatal occupational therapists, physiotherapists and speech and language therapists who work in neonatal care.
There will be a range of activities for parents, staff, charities and organisations to take part in, including fundraising for their chosen neonatal ward or charity, practising mindfulness and random acts of kindness.

Leo’s recently launched a nationwide survey to discover just how much of an impact having a sick or premature baby has on families after they leave a neonatal unit, and how health care professionals cope with working in such an emotionally a demanding environment.

Mental health is such a huge topic right now, and often the experiences which both parents and staff face on a neonatal unit can be very traumatic. From baby loss to emergency procedures, unexpected decline in baby’s health or a resuscitation of a baby - these have a huge impact on all of those involved."

Lottie King, founder of Leo’s

Thanks to recent findings from Bliss and The Smallest Things Charity, we know that whilst on the neonatal unit, many families experience mental health issues. However, what we want to know now is how this impacts once they go home. For example, are parents needing to take medication, are they needing to take time off work at different points of the year because of triggers, or are families struggling because of the strain something like this can put on relationships?

"By understanding this, we hope to inspire the changes needed so that when parents do go home, they can be supported, and their mental health is in a positive place.”

Leading London based neonatal psychologist Rebecca Chilvers is working with the charity to help them campaign for change and validate the results.

"As medicine advances, babies are surviving being born even earlier, some at 22 weeks gestation, and babies with complex needs are now able to go home with care-packages. The care I witnessed at the start of my career over 30 years ago is very different to the care babies receive now and that has a larger impact on parents and staff." 

Claire Campbell, Senior Neonatal Sister and Leo’s Trustee 

Leo’s was launched in 2018 in memory of baby Leo who died in his mum Lottie’s arms at only four hours old. The charity supports families through premature and traumatic births, the neonatal journey and beyond. It currently works with the neonatal units at The James Cook University Hospital, North Durham Hospital and Darlington Memorial Hospital.

It also supports the maternity department at The University Hospital of North Tees and works closely with both the Northern Neonatal Network.

To find out more about the week head here

For more information on Leo’s head to www.leosneonatal.org or follow them on Twitter, Instagram and Facebook on @Leosneonatal

The Pre-eclampsia Registry is a fantastic resource available to clinicians which needs the views of more patients, especially from outside the United States, It’s managed by APEC’s sister organisation in the United States (The Pre-eclampsia Foundation) and they have asked us to encourage more patients to get involved in the latest version. 
 
The Registry has recently teamed up with a group of doctors and scientists to launch a short new survey on various pre-eclampsia treatments and tests.
 
The treatments mentioned in the survey are not yet available for patients. Your opinions will help researchers understand how patients feel about these potential tests and treatments. 
The survey takes about 10 minutes to complete and will help inform research.
 
If you have previously been involved, please log in again or if you are new to it please go to https://www.preeclampsiaregistry.org and help inform the research of the future.  All too often the voice of the patient is a missing part of the jigsaw and this is a great way to be involved.
Thank you
Copyright © 2019 Action on Pre-eclampsia, All rights reserved.


Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.