Copy


Welcome
Dainere's Rainbow Run
Wicked
Maya's Rest
Upcoming Events
 


We are so blessed and honoured to be working with some of the most incredible people each and every day as we work to continue Dainere’s Legacy and her inspirational, selfless and tireless advocacy to elevate awareness and significant funds for research so no other children suffer and lose their young lives as she did.  We would like to introduce you to Connlaith Ni Raifeartaigh, one of the truly special people who we work with as part of Dainere’s Rainbow.

Hi everyone, my name is Connlaith Ni Raifeartaigh and I am the new Community Fundraising Coordinator at the Sydney Children’s Hospital Foundation. My role here involves working with our very generous community partners and supporters who provide much needed funding so that the medical staff at Sydney Children’s Hospital, Randwick can offer the best quality of care for sick and injured children.

As you might be able to tell from my name….I’m from Ireland and have lived happily in Australia for the past three years. I originally studied Irish Language Literature and Media Studies in university, but since moving to Sydney I have worked in fundraising for charities; most recently joining the wonderful Foundation team in August this year!

Since coming to the Sydney Children’s Hospital Foundation, I have had the pleasure of getting to know some of our most loyal donors and fundraisers who go above and beyond to give back to the Hospital - which, quite often, has treated a loved one close to them. This is how I have come to know Dainere’s lovely family. The Anthoneys have strived to increase awareness, raise significant funds, and honour Dainere’s spirit of generosity in implementing her amazing ideas. Seeing the dedication and commitment they have put into supporting the Kids Cancer Centre at the Hospital has been truly inspiring to me, and has emphasised to me the importance of what we do here at the Foundation. It is brilliant to see how much the local community has rallied around the Dainere’s Rainbow campaign - from family and friends, to politicians, to Dainere’s school, to local businesses. Without this support, crucial funding for research simply would not exist. And for this reason, we are all sincerely grateful!

Over the coming months, I look forward to working with the Anthoney’s closely on their annual gala dinner next June, and on various other great fundraising initiatives throughout the year. We will be warmly welcoming Dainere’s Rainbow committee members up to Sydney in the new year, where we will take a tour of the Hospital and have the opportunity to get to know one another a bit better!

I am very much looking forward to helping Dainere’s Rainbow go from strength to strength in making a difference in the world of paediatric brain tumour research in Dainere’s honour.

Paediatric brain tumours are the number one disease killer of children in Australia. (Australian Bureau of Statistics 2010-2015)

Burgmann Anglican School

The Dainere’s Rainbow Run commenced in 2014 and each year the wonderful Year 12 Students dedicate their time to plan and run this very special event.  We wish to express our deepest and heartfelt gratitude to everyone involved for continuing Dainere’s Legacy and helping to create change for all children diagnosed with paediatric brain tumours in such a unique and beautiful way.

“Dainere’s Rainbow Run was a 100m fun run completed by year 12 students at the Burgmann Anglican School athletics carnival in September.  Students from Years 9, 10 and 11 lined up beside the track and threw coloured Holi powder on the year 12 participants as they ran past. This run embodies Dainere’s passion for athletics and her favourite quote, “You Have To Go Through A Storm To Get To A Rainbow.”

It was an extremely moving and inspirational run to watch. When the colours embellished the students and the air around them the strong sense of Burgmann community and the kind morality of the students was evident. The run intends to raise funds for the Dainere’s Rainbow Fund through the students purchasing the Holi Powder and t-shirts for the run, but more than this it strives to continue Dainere’s legacy into the future. This run is a truly inspiring event which we hope will continue into the future, for many years to come”.
 
Diya Bomma & Allanah Marshall


Burgmann Anglican School Year 12 Students 2016

WICKED

The incredible untold story of an unlikely but profound friendship between two girls Glinda and Elphaba.

We wish to express our most humble, sincere and deepest gratitude to Anne Somes and all at Free-Rain Theatre Company for the extraordinary support they have shown towards Dainere’s Rainbow Brain Tumour Research Fund. 

Through the ‘Swankerfied’ Shoe Auction and Collection Bucket at the performance of Wicked on 21st October an incredible $1219.00 was raised for Dainere’s Rainbow for research to improve the outcomes of all children diagnosed with paediatric brain tumours.


We are so fortunate to have met the inspiring Tash from Maya’s Rest. She has so very kindly shared the story of Maya’s Rest with us to share with families going through the devastation of a paediatric brain tumour diagnosis and treatment. Maya’s Rest is a truly special and unique place of non-medical respite for families and we wish to congratulate Tash and family for their passion to help others.

Maya's Rest is set on 12 acres surrounded by beautiful countryside, a few minutes from Yass and 45 mins to Canberra. Situated on top of a hill, Maya's Rest provides peaceful views over the playground and valley below, the perfect place for a few days away.

At Maya's Rest we offer short breaks to families of children with serious illnesses, those in home based end of life care and time away for families who are grieving the loss of a baby or child.

These family based mini breaks is offered free of charge and includes all meals and optional activities, in hope that each family can spend time together without the worry that daily routine tasks demand.

Each family can use the time to relax and recharge, drawing strength from each other to continue on with their extremely difficult journeys.

Staying at Maya's Rest is similar to staying at a Ronald McDonald House, however, families have private interconnecting bedrooms, a private bathroom and the whole house to themselves during the day. 

With an extensive craft cupboard, board games, books, toys, gaming consoles, over 350 DVD's, a large playground, a trampoline and animals to pet, there's lots to keep the kids entertained.

Optional activities are also included and are donated by local businesses or run by skilled volunteers, either at Maya's Rest or in the wider community. Some examples of activities on offer are dining experiences, indoor pool passes,  professional photography session, dinosaur museum entry, yoga, music therapy, adult pamper sessions and more.

We also invite families’ to visit Maya’s Rest for afternoon tea as a chance to ask questions, take a few hours ‘out’, have a play and view the facilities, so they can decide if Maya's Rest is right for them.

Maya's Rest also hosts a playgroup session once a month for seriously ill children aged 0-5 years and their caregiver.

Maya's Rest is a legacy to our own little girl Maya, who was born with a rare form of soft tissue cancer, Rhabdomyosarcoma, in December 2010. Maya inspired so many people during her two year battle with cancer. We consider our time with her a gift, as she taught us so much. 

During Maya's battle with cancer we sought respite, together as a family, at Bear Cottage in Manly NSW, which offers respite and palliative care to families of children with life limiting illnesses. We visited Bear Cottage several times in Maya's final year and it is the place in which Maya passed away.

We believe without such support we would not of been able to make it through the difficult times and would not of had the chance to make a lot of the wonderful memories we made, while the daily demands of life were taken care of.  In Maya's honour we would like to offer other families on a similar journey the chance to experience such respite.

Unlike Bear Cottage, Maya's Rest is non - medically assisted respite, where the parents or care giver’s are required to attend to all their children’s needs. While time at Maya’s Rest is for families to visit together we of course welcome families who have lost their only child.

I would like to extend an invitation to everyone reading this newsletter who has a seriously ill child, or who is grieving the loss of a child. We welcome questions and booking enquiries.

Please contact us through our website www.mayasrest.com, our Facebook page by searching Maya’s Rest or via email to tash@mayasrest.com


December 1st – 24th 

Magical Christmas Light Display To Bring Joy and Give Hope

Gowrie and Gungahlin

Each night throughout December the magical lights will shine on the Southside and Northside of Canberra to elevate significant awareness of paediatric brain tumours and to raise crucial funds for research to improve the outcomes for all children diagnosed with this insidious and cruel disease. 

On weekends and during Christmas week there will be extra activities through stalls, choirs, delicious treats, special surprises and much more. Activities will vary at each location, so be sure to visit both. 

This Christmas give the greatest gift of all: hope to children with paediatric brain tumours through making a small donation when you visit the light display.  Know that 100% of all funds donated or raised by Dainere’s Rainbow go directly to research at The Sydney Children’s Hospital Kids Cancer Centre as we work in partnership to see a cure become a reality.
 
17th June 2017

‘Splendiferous Entertainment Extravaganza’

Putting a Spotlight on Paediatric Brain Cancer and working to see a cure become a reality.
 
Facebook
Twitter
Website
Dainere's Rainbow is a not for profit organisation - 100% of all funds raised or donated go to paediatric brain tumour research at Sydney Children's Hospital

Community Partners


Copyright © 2016 Dainere's Rainbow Brain Tumour Research Fund, All rights reserved.

SCHF Authority to Fundraise No. 1997 






This email was sent to <<Email Address>>
why did I get this?    unsubscribe from this list    update subscription preferences
Dainere's Rainbow Brain Tumour Research Fund · PO Box 325 Mitchell · Canberra, Act 2911 · Australia

Email Marketing Powered by Mailchimp