Copy


Welcome
Thank you from Dr David Ziegler
City2Surf 2016
Jarrett's Story
Mark's Story
Happily Ever After Gala Fundraising Dinner 2016
Upcoming Events
A Word from our Patron and Ambassador
 


We are excited to welcome you to our first ever issue of Dainere’s Rainbow monthly e-newsletter.  We hope you enjoy and find useful this new way to keep you informed about our Fund, upcoming events, updates on research and how you can make a difference.

Paediatric brain tumours are the number one disease killer of children in Australia. (Australian Bureau of Statistics 2010-2015)

THANK YOU FROM DR DAVID ZIEGLER

Thank you for your incredible support of Dainere’s Rainbow Brain Tumour Research Fund. Every day I see the impact your support has on the children and young people that we care for at the Kids Cancer Centre (KCC) at Sydney Children’s Hospital, Randwick.

Our brain tumour research program at the KCC is devoted to improving outcomes for all children with brain tumours. Brain tumours cause more deaths in childhood than any other disease, and, thanks to you, we have the leading national research program to directly tackle these devastating tumours. In the laboratory we are running a drug discovery program, where we are using robotic technology to screen thousands of chemicals to find new treatments. We have a translational program, where we can offer children whose tumours fail to respond to standard therapy the chance to receive new, breakthrough treatments. And we collaborate with leading international researchers to ensure that every child diagnosed with a brain tumour in our institution has access to state of the art treatments that offer an increased chance of cure.

Without the support of generous people like you it wouldn’t be possible to fund these research projects, and children with cancer wouldn’t have access to the clinical trials and medicines that are being produced as a result of these.

Dainere’s greatest wish was to raise significant funds and awareness for research to improve the outcomes for all children diagnosed with brain tumours. Together we’re fulfilling her wish and ensuring there is hope for future generations of children and their families.

Thank you for helping to continue Dainere’s work.






Dr. David Ziegler
Kids Cancer Centre
Sydney Children’s Hospital,
Randwick NSW


JARRETT’S STORY

Brain cancer has a devastating impact on the lives of families, it’s a ‘secret and silent’ killer, that has not received any substantial funding or resources for decades, and this is just truly devastating and unacceptable, we need to work together to change this.

Dainere was so excited as she had loved running and one day had hoped to represent the ACT in Cross Country and Athletics just as I did. Dainere was my number one fan, cheering me on in all my races and giving me the warmest hugs after each race, she told me she was so proud of me.

Dainere had wanted to cheer me on, running proudly as a Gold Charity Runner over the line in City2Surf 2013 but although she fought with every inch she had, her life was stolen by what is the cruellest and most insidious cancer of all.

I have continued to run City2Surf each year since as a Gold Charity Runner in memory of and as a legacy to Dainere.
 
Did you know that Jarrett has been so selfless, as an elite runner he has qualified each time as a preferred red group start runner but instead chooses to run to elevate awareness and raise crucial funds for Dainere's Rainbow Brain Tumour Research Fund.
 
We would be so sincerely and humbly grateful if you would consider supporting Jarrett as he runs for his beloved little sister Dainere and all children diagnosed with this number one disease killer of our precious children in Australia through clicking on the link below. Every little bit does make a difference as it goes towards research to give hope, a future, to create change and one day see a cure become a reality.

https://city2surf2016.everydayhero.com/au/jarrett
 
This year we are extremely honoured to also have the wonderful Mark Scarborough from My Gungahlin also Running to support Dainere’s Rainbow in his first ever City2Surf.
Support Jarrett

MARK’S STORY


A runner is defined as a person that runs. Although that is a simplistic definition I have struggled to call myself a runner. I have been attending parkrun Gungahlin regularly now for the last 12 months, I have completed the 10km at the Australian Running Festival but have struggled to call myself a runner.

I have never been a sporting or athletic type. My brother got the sporting genes in our family. A health kick last year saw me get back into parkrun and the gym at Elements4Life in Harrison. My first goal was to run the 5km at parkrun straight. For those that have seen me out running may have noticed the number 5 on the back of my shirt. That is where that comes from.

After a few months of running parkrun with intervals of running and walking I did meet my goal of being able to run the full 5km and have seen my times drop. This has been through the wonderful support of my coach at Elements4Life, my running buddy, Lisa from This Canberran Life and the group at parkrun Gungahlin.

Running the 10km at the Australian Running Festival this year was the furthest I had ever run. Previously to that was about 8km. I was very proud of doing the 10km in just over 1 hour. That last kilometre was the longest kilometre ever!

Every year I see the City2Surf on TV and think to myself next year I will do that. This is the first year I feel able to even attempt this event so I have signed up! I am not sure how I will go or what kind of time I will post but I will give it a go and at least finish it.

For this event I have decided I want to raise funds for a local charity 'Dainere's Rainbow Brain Tumour Research Fund' as motivation for the run and I am part of Dainere's Rainbow team with her brother Jarrett.

https://city2surf2016.everydayhero.com/au/mark-6
Support Mark
DAINERE’S RAINBOW BRAIN TUMOUR RESEARCH FUND HAPPILY EVER AFTER GALA FUNDRAISING DINNER 2016



Dainere's Rainbow Brain Tumour Research Fund Happily Ever After Gala Dinner at The Abbey Function Centre at Gold Creek was held on Saturday 18th June 2016.

This event is the major fundraiser for the Dainere's Rainbow Brain Tumour Research Fund and was made possible due to the extraordinary and charitable major sponsors, Group One, Beyond Bank and Tatts On Tatts Off. The event was supported by community partners Transit Graphics and QCity Transit, entertainment sponsors Regional Wholesale Fruit Market and Simeco Electrical Contractors and many other wonderful community sponsors.

The Abbey looked absolutely amazing for this event, The Abbey team put on a fantastic night with the most delicious food and excellent service. The atmosphere throughout the entire night was truly magical and enchanting.

Chris Kimball with his genuine, warm nature was an outstanding host for the evening. Dr Jeff Fletcher spoke about his work in paediatrics and the recent announcement by the ACT Government that they will be providing a dedicated paediatric palliative care nurse for the ACT. Dr Fletcher shared a personal story by a family on just how important this service will be.
Local Real Estate Agent and auctioneer extraordinaire Jason Roses from Luton Properties entertained the crowd whilst conducting the auction which drew fierce bidding on the assortment of unique and high quality items. 

Throughout the evening the crowd were entertained by Classical Guitarist Jeffrey Cheah, Balloon Modelling from Just Clowning Around, a sublime, delightful and energetic performance from Free-Rain Theatre Company and the cast members of The Little Mermaid, talented local band Something Like This, who got everyone up and dancing and extra Special Guest Amber Nicholls with her soulful and angelic voice performed two very special touching songs. Special mention of the spectacular sound and lighting from Eclipse Lighting and Sound that added a truly magical touch to the entire event.

The evening raised a massive $43,851.00 of which 100% will go to vital and innovative research towards fulfilling Dainere's wish of ensuring there is hope for future generations of children and their families devastated by the diagnosis of a brain tumour, the number one disease killer of children in Australia.

City2Surf

 

Sunday 14th August 2016

Christmas Light Display

 

Northside and Southside Locations Throughout December 2016 

A WORD FROM OUR PATRON AND AMBASSADOR


In February some of our committee travelled to the Sydney Children’s Hospital to experience first-hand what happens behind the scenes to care for kids at the cancer treatment ward. The most confronting experience I myself, the father of two, have endured for a long time. The visit however gave us confidence that the money we raise is going to great use to fund the vital research needed.

I love working with the dedicated team raising funds and awareness. Christmas last year my husband Roger and I held our first Southside Fundraising Christmas Light Display every Saturday night through December we held stalls selling my craft, gift items and my decadent Rocky Road raising $3100 which was so pleasing. Planning for the 2016 Christmas lights display is already underway.  On 1st May I organised a Fashion Parade at Sorbet, Canberra Outlet Centre. We raised an amazing $1500 at this event $300 more than last year. It will now be an annual event.

Please remember, unlike many other funds and charities,100% of all funds raised by Dainere’s Rainbow go directly to the Sydney Children’s Hospital, no administration fees or running costs are incurred. 
We had no idea what brain cancer meant, we just couldn’t believe that something this horrible could even exist. We didn’t expect it and no one knew how to react.

People don’t like to associate diseases with children because to think that a child is dying is simply incomprehensible.


Brain Cancer is a confronting topic but we can’t afford to step away we need to stand tall, stand together, raise our voices to educate, give knowledge and elevate awareness
Facebook
Twitter
Website
Dainere's Rainbow is a not for profit organisation - 100% of all funds raised or donated go to paediatric brain tumour research at Sydney Children's Hospital
Community Partners

Copyright © 2016 Dainere's Rainbow Brain Tumour Research Fund, All rights reserved.

SCHF Authority to Fundraise No. 1997 

Share this with your friends
 






This email was sent to <<Email Address>>
why did I get this?    unsubscribe from this list    update subscription preferences
Dainere's Rainbow Brain Tumour Research Fund · PO Box 325 Mitchell · Canberra, Act 2911 · Australia

Email Marketing Powered by MailChimp