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RELEASE Newsletter December 2016
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Newsletter No. 4

December 2016

Season's Greetings

We have had a fantastic year working with aphasia researchers from across the world to build the RELEASE database. Together, we have created an archive of 79 datasets contributed from 23 countries. Data from over 4,500 anonymized individual patients has been shared and pooled for investigation into the recovery and rehabilitation of people with aphasia following stroke. 

As the year closes, we reach the halfway point for the RELEASE study. With just one year ahead of us, data analysis is now underway and we are looking forward to 2017. Until then, we wish you a very happy and peaceful holiday!

The RELEASE Team
 

We have exceeded our data sharing target by over 

50%!


Thank you to the members of the RELEASE Collaboration for sharing their aphasia research datasets.
Dr Stefanie Abel (UK)
Dr Masahiro Abo (JP)
Dr Myzoon Ali (UK) 
Dr Frank Becker (NO)
Dr Audrey Bowen (UK)
Dr Caitlin Brandenburg (AU) 
Dr Caterina Breitenstein (DE)
Prof David Copland (AU)
Dr Tamara Cranfill (US)
Dr E. Susan Duncan (US)
Ms Marie di Pietro-Bachmann (CH)
Dr Joanne Fillingham (UK)
Dr Marialuisa Gandolfi (IT)
Dr Bertrand Glize (FR)
Dr Erin Godecke (AU)
Dr Katerina Hilari (UK)
Dr Jacqueline Hinckley (US)
Dr Simon Horton (UK)
Prof David Howard (UK)
Dr Petra Jaecks (DE)
Dr Beth Jefferies (UK)
Dr Luis Jesus (PT)
Dr Monika Jungblut (DE)
Dr Eun Kyoung Kang (KR)
Dr Maria Kambanaros (CY)
Prof Eman Khedr (EG)
Dr Tarja Kukkonen (FI)
Prof Matt Lambon Ralph (UK)
Dr Marina Laganaro (CH)
Prof Ann-Charlotte Laska (SE)
Dr Béatrice Leeman (CH) 
Dr Roxele Ribeiro Lima (BR)
Dr Antje Lorenz (DE) 
Prof Brian MacWhinney (US)
Dr Flavia Mattioli (IT) 
Dr İlknur Maviş (TR)
Dr Marcus Meinzer (AU) 
Dr Enrique Noé Sebastián (ES)
Dr Reza Nilipour (IR)
Dr Rebecca Palmer (UK)
Dr Brigida Patricio (PT)
Dr Isabel Pavão Martins (PT)
Dr Nam-Jong Paik (KR) 
Dr Tatjana Prizl Jakovic (HR)
Dr Cathy Price (UK)
Dr Miranda Rose (AU)
Dr Charlotte Rosso (FR)
Dr Ilona Rubi-Fesson (DE)
Dr Marina Ruiter (NL)
Dr Rebecca Shisler Marshall (US)
Dr Claerwen Snell (UK)
Dr Jerzy P Szaflarski (US) 
Dr Shirley Thomas (UK)
Dr Ineke van de Meulen (NL)
Dr Mieke van de Sandt-Koenderman (NL)
Dr Evy Visch-Brink (NL)
Prof Heather Wright Harris (US)
Prof Linda Worrall (AU)
Countries represented in the RELEASE database.

Rotterdam Aphasia Research Group

Co-investigator Profile 
Every week we welcome new RELEASE collaborators. Here we share the international, multi-disciplinary expertise from across the RELEASE collaboration working to enhance recovery following aphasia after stroke. 
Evy Visch-Brink, Mieke van de Sandt-Koenderman and Femke Nouwens, members of RELEASE and CATs, from the Rotterdam Aphasia Research Group

The interdisciplinary Rotterdam Aphasia Research Group is a collaboration of the Erasmus University Medical Center and Rijndam Rehabilitation in the Netherlands with participating clinicians/researchers from the departments of Neurology, Rehabilitation Medicine, Radiology, Neurosurgery, Neuroscience and Public health.

The main focus of the Rotterdam Aphasia Research Group is recovery, prognosis and treatment of aphasic patients. The group has conducted a large prospective cohort study and several randomised controlled trials on the efficacy of specific treatment methods. Several diagnostic instruments and treatment programs have been developed, validated and implemented in daily practice by this research group. The efficacy studies are focused on developing and implementing novel treatment programs or treatment approaches, and include imaging techniques and brain stimulation techniques. In addition to disorder oriented treatment, the development and implementation of treatment protocols supporting conversation for partners and patients is an important topic.

Find more information about their work here: http://www.erasmusmc.nl

Patient and Public Involvement

Simon Horton of the University of East Anglia kindly hosted our first patient and public involvement meeting on 29th September.  Marian Brady and Louise Williams spoke with an expert group of people with aphasia and carers.  We presented the RELEASE project to them and invited their comments and feedback along with ideas for their input in the study. We aim to have approximately two more meetings with Simon and this group before the project is completed. 

Upcoming events


We are looking forward to sharing information about RELEASE and the creation of the database at conferences over the next few months. This month, the International Aphasia Rehabilitation Conference (IARC) takes us to London. Dr Louise Williams will be presenting 'Establishing an international shared aphasia individual patient dataset for the REhabilitation and recovery of peopLE with Aphasia after StrokE (RELEASE) project' on Wednesday 14th December, 3-3.30pm). Please come and say hello!

We will be visiting Rotterdam for the Final Conference of the Collaboration of Aphasia Trialists (CATs) in February, followed by a trip to Liverpool for the International Clinical Trials Methodology Conference (ICTMC) in May.
UPDATES FOR MEMBERS OF THE RELEASE COLLABORATION
We will be submitting our 12 month report to project funders, the National Institute of Health Research (NIHR) in January. Thank you to everyone who contributed and commented.
We will host a pre-IARC RELEASE Collaborators Meeting on 13th December at City University, London, UK. We look forward to discussing plans for next year. 
Email RELEASE
RELEASE Twitter
CATs Website
REhabilitation and recovery of peopLE with Aphasia after StrokE (RELEASE) is a National Institute of Health Research (NIHR) funded project developed within the Collaboration of Aphasia Trialists that aims to explore the contribution that individual characteristics and intervention components make to the natural history of recovery and rehabilitation of people with aphasia following stroke. Over two years, we will be conducting secondary data analyses of pooled, anonymised individual patient data from aphasia research studies to inform our future research activities.
 
We will be publishing a brief update on our progress every few months. If you ever find that you would prefer not to hear from us, simply click 'unsubscribe' at the bottom of any email, but we hope you will stay involved and share our news with colleagues who may be interested. 
RELEASE is funded by the National Institute for Health Research's HS&DR Programme (14/04/22). 






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RELEASE · NMAHP Research Unit · Glasgow Caledonian University · Glasgow, G4 0BA · United Kingdom

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